Arturito Estopiñan , the American child with ‘Charlie Gard’s’ mitochondrial disease RRM2B – has a different form of the disease. He developed symptoms at fourteen months – he was already an active, walking child. Charlie Gard stopped developing at two months.
The situation is NOT the same.
Yet Arturito’s treatment is supposed to be the ‘cure’ for Charlie Gard. I think the parents have been grasping at straws and the world has become delusional! They have been used!
Charlie is nearly a year old – most of his poor little life, he has been kept alive by machines.
This is about Arturito Estopiñan and his treatment. And below is a video of Arturito Estopiñan today.
Charlie Gard – go peacefully, little fella. You deserve better than little Arturito – you deserve a real life even if it is only a healing death.
About Arturito After a little more than a year of hospitalization, the boy improved enough by October 2013 to be brought to the family’s new Baltimore home, where the parents had to learn how to deliver demanding care.
Fackler and his staff taught the Estopiñans how to refill the oxygen tanks and to rewire the circuits to his ventilator while doing routine maintenance on the device. The parents also know how to quickly pump air into their son’s lungs manually whenever a breathing emergency arose. Over time, Arturo and Olga have passed along their knowledge to a constantly changing troupe of nurses who help them care for Arturito around the clock. Up to a dozen people are in and out of the family’s apartment each day, administering treatments and refilling oxygen tanks.
“It’s difficult to coordinate how many people come in,” Olga said. “We’re very grateful, but sometimes I think I don’t have privacy in my own home.”
Daily life revolves around Arturito’s treatment, delivered every four hours. Olga meticulously keeps a detailed schedule — the drugs he takes, the food he eats, the cleaning he requires. Sleep is limited, and some days the parents go without. They often get up in the middle of the night to help nurses handle an emergency.
Tired of dressing Arturito in hospital gowns, Olga and Arturo buy regular clothes for their son, cutting the shirts open in the back so he can wear them without disrupting his medical equipment. Their goal is to make him feel as much like a normal child as possible, despite constantly needing a ventilator and being fed through a tube that goes into his stomach.
For Olga, this is a full-time job, replacing her previous position as a human resource assistant at IBM. That has put a major financial strain on the family, forcing them to rely heavily on Medicare and private insurance.
“Yes, there are improvements, but I get frustrated he’s not improving fast enough,” Olga said.
The hospital statement about Charlie Gard
Katie Gollop QC, who led Great Ormond Street’s legal team, suggested that further treatment would leave Charlie in a “condition of existence”.
She said therapy proposed in the USA was “experimental” and would not help Charlie.
“There is significant harm if what the parents want for Charlie comes into effect,” she told appeal judges. “The significant harm is a condition of existence which is offering the child no benefit.”
She added: “It is inhuman to permit that condition to continue.”
The life of Arturito Estopiñan today.